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I'm Aware That I'm Rare: the phaware® podcast

A new podcast series devoted to raising global pulmonary hypertension awareness with dynamic stories from PH patients, caregivers and medical professionals from around the world. New Episodes every Monday & Thursday!

Use the search bar above to search episodes by topic. Search "phawareMD" to discover podcasts with medical professionals.

Get our custom smartphone app (for iPhone™, Android™, and Amazon™ devices). It's the most convenient way to access the phaware™ podcast.

The views and opinions expressed in the phaware® podcast do not necessarily reflect the official policy or position of phaware global association. Information on phaware.global and phaware social media sites is provided for general information only. It is not intended as legal, medical or other professional advice, and should not be relied upon as a substitute for consultations with qualified professionals who are familiar with your individual needs.

To learn more about PH visit www.phaware.global. phaware® is a 501(c)3 organization. © Copyright 2015. All Rights Reserved.

Generously Supported in part by Actelion Pharmaceuticals US, Inc., Bayer, United Therapeutics Corporation & CVS Health.

Alicia & Adriana Kubes - phaware® interview 283

Sep 20, 2019

Sisters Alicia and Adriana Kubes discuss Alicia's pulmonary hypertension diagnosis and Adriana's role as a caregiver and ways they are facing this chronic illness together.

Alicia:
My name is Alicia Kubes and I'm a pulmonary hypertension patient.

Adriana:
Hi, my name is Adriana Kubes and I'm a pulmonary...


Sep 19, 2019

Sisters Alicia and Adriana Kubes discuss Alicia's pulmonary hypertension diagnosis and Adriana's role as a caregiver and ways they are facing this chronic illness together.

Learn more about pulmonary hypertension trials at www.phaware.global/clinicaltrials. Never miss an episode with the phaware® podcast app. Follow us...


Dora Erdelyi - phaware® interview 282

Sep 17, 2019

Hungarian Ex-PH patient, Dora Erdelyi, discusses her double lung transplant and how patients in Budapest grapple with PH.

I am Dora Erdelyi. I came from Budapest, Hungary. I'm an ex-PH patient, a double lung transplant survivor.

It began when I was feeling that I got tired easily. I couldn't go up to the second floor...


Sep 16, 2019

Hungarian Ex-PH patient, Dora Erdelyi, discusses her double lung transplant and how patients in Budapest grapple with PH.

Learn more about pulmonary hypertension trials at www.phaware.global/clinicaltrials. Never miss an episode with the phaware® podcast app. Follow us @phaware on Facebook, Twitter, Instagram, YouTube...


Vicki Banos - phaware® interview 281

Sep 13, 2019

Pulmonary hypertension patient Vicki Banos discusses her PH diagnosis. 

My name is Vicki Banos and I'm a pulmonary hypertension patient.

I had had a knee replacement in Denver in 2012, and I began to feel really weak and fatigued. I couldn't walk two blocks. I had some other things going on at the same time. I had an...