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I'm Aware That I'm Rare: the phaware® podcast

A new podcast series devoted to raising global pulmonary hypertension awareness with dynamic stories from PH patients, caregivers and medical professionals from around the world. New Episodes every Monday & Thursday!

Use the search bar above to search episodes by topic. Search "phawareMD" to discover podcasts with medical professionals.

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The views and opinions expressed in the phaware® podcast do not necessarily reflect the official policy or position of phaware global association. Information on phaware.global and phaware social media sites is provided for general information only. It is not intended as legal, medical or other professional advice, and should not be relied upon as a substitute for consultations with qualified professionals who are familiar with your individual needs.

To learn more about PH visit www.phaware.global. phaware® is a 501(c)3 organization. © Copyright 2015. All Rights Reserved.

Generously Supported in part by Actelion Pharmaceuticals US, Inc., Bayer & CVS Health.

Stephanie Volino - phaware® interview 242

Apr 30, 2019

Pulmonary hypertension caregiver Stephanie Volino discusses her daughter Anna's road to a PH diagnosis following the loss of her other daughter, Sophia, who passed away from pulmonary hypertension after one week of finding out that she had this horrific disease.

My name is Stephanie Volino. I am a caregiver of a young...


Apr 29, 2019

Pulmonary hypertension caregiver Stephanie Volino discusses her daughter Anna's road to a PH diagnosis following the loss of her other daughter, Sophia, who passed away from pulmonary hypertension after one week of finding out that she had this horrific disease.

Learn more about pulmonary hypertension trials at


Shaye Wallace - phaware® interview 241

Apr 26, 2019

Pulmonary hypertension patient, Shaye Wallace discusses her diagnosis at age 10, why she chose a Potts shunt surgery and how she's battling the depression that comes with living with PH.

My name is Shaye Wallace and I am from Houston, Texas, and I have pulmonary hypertension.

I was ten years old and I fell in school. I...


Apr 25, 2019

Pulmonary hypertension patient, Shaye Wallace discusses her diagnosis at age 10, why she chose a Potts shunt surgery and how she's battling the depression that comes with living with PH.

Learn more about pulmonary hypertension trials at www.phaware.global/clinicaltrials. Never miss an episode with the phaware®...


Liza Bonpin - phaware® interview 240

Apr 23, 2019

Pulmonary hypertension pediatric caregiver, Liza Bonpin discusses her daughter Maddie's diagnosis, details her right side congenital diaphragmatic hernia, and how she lives life tethered to O2 24/7 since birth.

My name is Liza Bonpin. I'm a parent of Madeline. We also call her Maddie. Our connection with PH is Maddie...