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I'm Aware That I'm Rare: the phaware® podcast

A new podcast series devoted to raising global pulmonary hypertension awareness with dynamic stories from PH patients, caregivers and medical professionals from around the world. New Episodes every Monday & Thursday!

Use the search bar above to search episodes by topic. Search "phawareMD" to discover podcasts with medical professionals.

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The views and opinions expressed in the phaware® podcast do not necessarily reflect the official policy or position of phaware global association. Information on phaware.global and phaware social media sites is provided for general information only. It is not intended as legal, medical or other professional advice, and should not be relied upon as a substitute for consultations with qualified professionals who are familiar with your individual needs.

To learn more about PH visit www.phaware.global. phaware® is a 501(c)3 organization. © Copyright 2015. All Rights Reserved.

Generously Supported in part by Actelion Pharmaceuticals US, Inc., Bayer & CVS Health.

Shannon O'Donnell - phaware® interview 251

May 31, 2019

Shannon O'Donnell was diagnosed with pulmonary hypertension at age 6.  Shannon recorded this interview on the day of her college graduation. She details her PH journey on the eve of her 18 year PH diagnosis anniversary.

My name is Shannon O'Donnell. I have been a PH patient for 18 years, and I am from Boston, Mass.

I...


May 30, 2019

Shannon O'Donnell was diagnosed with pulmonary hypertension at age 6.  Shannon recorded this interview on the day of her college graduation. She details her PH journey on the eve of her 18 year PH diagnosis anniversary.

Learn more about pulmonary hypertension trials at www.phaware.global/clinicaltrials. Never miss an...


PH Awareness Film - phaware® interview 250

May 28, 2019

In our 250th episode, phaware.global co-founders Steve Van Wormer and Marie Rand reveal a "breathtaking" new PH Awareness short film project with the film's director and producer, Elisabeth White from RooAndKanga Productions.

Steve:             
Welcome to I'm Aware That I'm Rare, the phaware® podcast. My name is...


May 27, 2019

In our 250th episode, phaware.global co-founders Steve Van Wormer and Marie Rand reveal a "breathtaking" new PH Awareness short film project with the film's director and producer, Elisabeth White from RooAndKanga Productions.

Learn more about pulmonary hypertension and our PH Awareness short film at


Raele Robison - phaware® interview 249

May 24, 2019

PhD student Raele Robison discusses her scleroderma and pulmonary hypertension diagnosis and how her work in the field of clinical research helps her connect with the ALS patients she works with.

My name is Raele Robison and I'm a pulmonary hypertension patient.

So I am a PhD student. I go to the University of...