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I'm Aware That I'm Rare: the phaware® podcast

A new podcast series devoted to raising global pulmonary hypertension awareness with dynamic stories from PH patients, caregivers and medical professionals from around the world. New Episodes every Monday & Thursday!

Use the search bar above to search episodes by topic. Search "phawareMD" to discover podcasts with medical professionals.

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The views and opinions expressed in the phaware® podcast do not necessarily reflect the official policy or position of phaware global association. Information on phaware.global and phaware social media sites is provided for general information only. It is not intended as legal, medical or other professional advice, and should not be relied upon as a substitute for consultations with qualified professionals who are familiar with your individual needs.

To learn more about PH visit www.phaware.global. phaware® is a 501(c)3 organization. © Copyright 2015. All Rights Reserved.

Generously Supported in part by Actelion Pharmaceuticals US, Inc., Bayer & CVS Health.

Darren Bell - phaware® interview 239

Apr 19, 2019


Darren Bell is a former PHA Canada President and Chair of the Board of Directors. One of PHA Canada's founding board members, Darren joined the PH community when his son Dylan was diagnosed with IPAH in 1998. Dylan lost his battle with PAH in 2007 at the age of 12, two years after his younger brother Hunter passed away...


Apr 18, 2019

Darren Bell is a former PHA Canada President and Chair of the Board of Directors. One of PHA Canada's founding board members, Darren joined the PH community when his son Dylan was diagnosed with IPAH in 1998. Dylan lost his battle with PAH in 2007 at the age of 12, two years after his younger brother Hunter passed...


Monica A. Sanchez - phaware® interview 238

Apr 16, 2019

Pulmonary hypertension patient, Monica A. Sanchez discusses her PH diagnosis, Graves' disease and hypothyroidism and how she advocates for herself.

My name's Monica Sanchez. I'm from La Puenta, California, and my connection with PH is I am a PH patient.

Recently with PH, I developed Graves’ disease...


Apr 15, 2019

Pulmonary hypertension patient, Monica A. Sanchez discusses her PH diagnosis, Graves' disease and hypothyroidism and how she advocates for herself.

Learn more about pulmonary hypertension trials at www.phaware.global/clinicaltrials. Never miss an episode with the phaware® podcast app. Follow us @phaware on Facebook,...


Alejandra Hernandez - phaware® interview 237

Apr 12, 2019

Pulmonary hypertension patient, Alejandra Hernandez discusses being diagnosed with PH in the 9th week of pregnancy and the power of acceptance while battling this rare disease.

My name is Alejandra Hernandez. I am 35 years old. I live in the city of Hawthorne, California. I was first diagnosed back in November of 2009....