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I'm Aware That I'm Rare: the phaware® podcast

A new podcast series devoted to raising global pulmonary hypertension awareness with dynamic stories from PH patients, caregivers and medical professionals from around the world. New Episodes every Monday & Thursday!

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The views and opinions expressed in the phaware® podcast do not necessarily reflect the official policy or position of phaware global association. Information on and phaware social media sites is provided for general information only. It is not intended as legal, medical or other professional advice, and should not be relied upon as a substitute for consultations with qualified professionals who are familiar with your individual needs.

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Generously Supported in part by Actelion Pharmaceuticals US, Inc., Bayer & CVS Health.

Dec 19, 2016

Canadian pulmonary hypertension patient, Jenn Lalonde discusses her road to diagnosis, the need for PH awareness and how she is using writing as a therapeutic tool that not only benefits her but others as well.

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Louise Pennewell
over two years ago

It lifts me up to listen to other journeys. Thank you for sharing. I'm aware that I'm rare, too! Keep on keepin on. 💕

over two years ago

I remember when you were first diagnosed with PH, my Mom was picking me up from a friends house when she told me. I remember her saying that you were very sick with a rare disease and that your diagnosis was not very good. I cried on the way home and was scared for you. My mom started doing research to become more informed because we had never heard of Pulmonary Hypertension before. I also remember calling you while you were in the hospital in London I believe, early on in your diagnosis. I remember being nervous lol, cause I wasn't sure what to say. When I said Hi you new who it was right away, that made me feel so good lol cause I always think that I'm forgettable hehe. Jenn, I have always looked up to you. You are an inspiration to me and so many others. You were always so kind to me even when I was the annoying little cousin lol. You have brought much awareness to PH for me and many others. Love you!!!!

over two years ago

You inspire many my dear friend ❤

Suzanne Lecour
over two years ago

Hi Jenn, I listened to your podcast and I know I tell you this often, but I so love you! I love your honesty, your realness and that it isn't sugar coated! Why waist time sugar coating anything .. really, a waist of precious time and being real and honest is the way to be. YOU are my hero .. you are a blessing to all of us who know you and I just want you to know that .. we love you to the moon and back and couldn't be more proud of the woman you are. Thank you for sharing your journey and being truly are a blessing in more ways than you know. Love you my sweet xo