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I'm Aware That I'm Rare: the phaware® podcast

A new podcast series devoted to raising global pulmonary hypertension awareness with dynamic stories from PH patients, caregivers and medical professionals from around the world. New Episodes every Monday & Thursday!

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The views and opinions expressed in the phaware® podcast do not necessarily reflect the official policy or position of phaware global association. Information on phaware.global and phaware social media sites is provided for general information only. It is not intended as legal, medical or other professional advice, and should not be relied upon as a substitute for consultations with qualified professionals who are familiar with your individual needs.

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Generously Supported in part by Actelion Pharmaceuticals US, Inc., Bellerophon Therapeutics & CVS Health.

Nov 14, 2016

CTEPH patient Margaret Owens shares her pulmonary hypertension diagnosis story and how he life changed after she received a V/Q Scan and surgery to cure her rare form of PH.

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Regina Byers
over two years ago

I also have CTEPH. My story is similar to yours. I had my surgery (pulmonary endarectomy) March of 2015. It was by God's grace that I came through the seen hour surgery as a new person. I can agree with you as you stated after surgery I could breathe again and walk without getting out of breathe. I had told my family that I had to have the surgery because I also did not want to live a poor quality of life. I am on warafin for the rest of my life, but that's okay too.
May God bless you.

Regina Byers