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I'm Aware That I'm Rare: the phaware® podcast

A new podcast series devoted to raising global pulmonary hypertension awareness with dynamic stories from PH patients, caregivers and medical professionals from around the world. New Episodes every Monday!

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Nov 14, 2016

CTEPH patient Margaret Owens shares her pulmonary hypertension diagnosis story and how he life changed after she received a V/Q Scan and surgery to cure her rare form of PH.

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Regina Byers
seven and a half years ago

I also have CTEPH. My story is similar to yours. I had my surgery (pulmonary endarectomy) March of 2015. It was by God's grace that I came through the seen hour surgery as a new person. I can agree with you as you stated after surgery I could breathe again and walk without getting out of breathe. I had told my family that I had to have the surgery because I also did not want to live a poor quality of life. I am on warafin for the rest of my life, but that's okay too.
May God bless you.

Regina Byers