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I'm Aware That I'm Rare: the phaware® podcast

A new podcast series devoted to raising global pulmonary hypertension awareness with dynamic stories from PH patients, caregivers and medical professionals from around the world. New Episodes every Tuesday!

Use the search bar above to search episodes by topic. Search "phawareMD" to discover podcasts with medical professionals.

The views and opinions expressed in the phaware® podcast do not necessarily reflect the official policy or position of phaware global association. Information on phaware.global and phaware social media sites is provided for general information only. It is not intended as legal, medical or other professional advice, and should not be relied upon as a substitute for consultations with qualified professionals who are familiar with your individual needs.

2026 Sponsorship support was made possible from: Merck & Co, Inc., Johnson & Johnson, Liquidia Technologies, Inc., Gossamer Bio, Pulmovant and Insmed Incorporated.

To learn more about PH visit www.phaware.global. phaware® is a 501(c)3 organization. © Copyright 2025. All Rights Reserved.

Jun 30, 2026

Who Cares for the Caregiver When Everyone Else Comes First?

Behind every pulmonary hypertension patient is someone quietly running on empty. Laura Camponeschi pulls back the curtain on caregiver burnout—the emotional, mental, and physical toll that builds when someone is “always on” and never feels safe...


Dawn Ogden - phaware® podcast interview 578

Jun 24, 2026

Three Generations. One Gene. A Rare Disease She Couldn’t Outrun.

Dawn Ogden has lived her entire adult life under the shadow of pulmonary hypertension. After losing her sister and watching her father battle the disease, Dawn learned it was genetic—and that she carried it. What followed was a lifetime of testing,...


Jun 23, 2026

Three Generations. One Gene. A Rare Disease She Couldn’t Outrun.

Dawn Ogden has lived her entire adult life under the shadow of pulmonary hypertension. After losing her sister and watching her father battle the disease, Dawn learned it was genetic—and that she carried it. What followed was a lifetime of testing,...


Carla Kinsey - phaware® podcast interview 577

Jun 17, 2026


She Went Looking for Answers and Ended Up Building a Lifeline

Before Zoom, before Facebook groups, pulmonary hypertension patient, Carla Kinsey, had only a voice on a phone line. That loneliness pushed her to do something terrifying: start a support group herself. What began as a need for connection became a lifeline...


Jun 16, 2026

She Went Looking for Answers and Ended Up Building a Lifeline

Before Zoom, before Facebook groups, pulmonary hypertension patient, Carla Kinsey, had only a voice on a phone line. That loneliness pushed her to do something terrifying: start a support group herself. What began as a need for connection became a lifeline...