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I'm Aware That I'm Rare: the phaware® podcast

A new podcast series devoted to raising global pulmonary hypertension awareness with dynamic stories from PH patients, caregivers and medical professionals from around the world. New Episodes every Tuesday!

Use the search bar above to search episodes by topic. Search "phawareMD" to discover podcasts with medical professionals.

The views and opinions expressed in the phaware® podcast do not necessarily reflect the official policy or position of phaware global association. Information on phaware.global and phaware social media sites is provided for general information only. It is not intended as legal, medical or other professional advice, and should not be relied upon as a substitute for consultations with qualified professionals who are familiar with your individual needs.

2026 Sponsorship support was made possible from: Merck & Co, Inc., Johnson & Johnson, Liquidia Technologies, Inc., Gossamer Bio, Pulmovant, Insmed Incorporated and Corsair Pharma, Inc.

To learn more about PH visit www.phaware.global. phaware® is a 501(c)3 organization. © Copyright 2025. All Rights Reserved.

Carolyn Mathur - phaware® interview 587

Aug 26, 2026


Out of Breath, Not Out of Dreams: One Woman’s PH Journey Across 79 Countries


Carolyn Mathur was told she had only hours to live. Then days. Then months. Instead of waiting to die, she chose to live—loudly, joyfully, and without apology. Nearly three decades later, she’s still here, traveling the world, and...


Aug 25, 2026

Out of Breath, Not Out of Dreams: One Woman’s PH Journey Across 79 Countries

Carolyn Mathur was told she had only hours to live. Then days. Then months. Instead of waiting to die, she chose to live—loudly, joyfully, and without apology. Nearly three decades later, she’s still here, traveling the world, and...


Sherri Odusanya - phaware® interview 586

Aug 19, 2026

Pulmonary Hypertension Tried to Shrink Her World. She Made It Bigger.

Being prescribed oxygen broke PAH patient, Sherri Odusanya, in a way her diagnosis hadn’t. Sleeping beside a roaring machine. Dragging tanks through daily life. Crying in the car after picking up her daughter from school. Then came the real gut...


Aug 18, 2026

Pulmonary Hypertension Tried to Shrink Her World. She Made It Bigger.

Being prescribed oxygen broke PAH patient, Sherri Odusanya, in a way her diagnosis hadn’t. Sleeping beside a roaring machine. Dragging tanks through daily life. Crying in the car after picking up her daughter from school. Then came the real gut...


Kathy Ilano - phaware® interview 585

Aug 12, 2026

Misdiagnosed at 19, Married After Heart Failure and Living Moment to Moment

Pulmonary hypertension patient, Kathy Ilano believed she’d never marry. Until she met her husband at her high school reunion. Still recovering from heart failure, carrying grief, fear, and a sodium-restricted diet, Kathy disclosed her illness...