I'm Aware That I'm Rare: the phaware® podcast

A new podcast series devoted to raising global pulmonary hypertension awareness with dynamic stories from PH patients, caregivers and medical professionals from around the world. New Episodes every Monday!

Use the search bar above to search episodes by topic. Search "phawareMD" to discover podcasts with medical professionals.

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The views and opinions expressed in the phaware® podcast do not necessarily reflect the official policy or position of phaware global association. Information on phaware.global and phaware social media sites is provided for general information only. It is not intended as legal, medical or other professional advice, and should not be relied upon as a substitute for consultations with qualified professionals who are familiar with your individual needs.

2023 sponsorship support was made possible from: CVS Specialty, Enzyvant, Janssen, Liquidia Technologies, Inc., Gossamer Bio and Merck & Co, Inc.

Angela Bates, MD - phaware® interview 445

Dec 5, 2023

In this episode, Angela Bates, MD from Stollery Children’s Hospital, discusses the importance of incorporating quality of life into the management strategies for pediatric pulmonary hypertension patients.

Dr. Bates also talks about the importance of allowing patients to engage in activities they enjoy, even with...

Episode 445 - Angela Bates, MD

Dec 4, 2023

Karina Macias - phaware® interview 441

Nov 9, 2023

Pulmonary hypertension pediatric care partner, Karina Macias, discusses her son Tito's PH journey and why she dedicated her life to becoming a certified nurse assistant. Tito was named Stanford's Race Against PH 2023 Pediatric PH Courage Award recipient. #raceagainstph @phaatstanford

My name's Karina Macias, and I am...

Episode 441 - Karina Macias

Nov 8, 2023

In this episode, pulmonary hypertension pediatric care partner, Karina Macias, discusses her son Tito's PH journey and why she dedicated her life to becoming a certified nurse assistant. Tito was named Stanford's Race Against PH 2023 Pediatric PH Courage Award recipient. #raceagainstph @phaatstanford

Learn more about...

Jennifer Gendron - phaware® interview 432

Sep 19, 2023

On the 14th anniversary of her son's life-saving lung transplant, Canadian pulmonary hypertension care partner, Jennifer Gendron discusses how the PH landscape has changed over the past 20 years and life post-surgery.

My name is Jennifer Gendron and I'm from a small town in New Brunswick, Canada. My oldest son was...