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I'm Aware That I'm Rare: the phaware® podcast

A new podcast series devoted to raising global pulmonary hypertension awareness with dynamic stories from PH patients, caregivers and medical professionals from around the world. New Episodes every Monday!

Use the search bar above to search episodes by topic. Search "phawareMD" to discover podcasts with medical professionals.

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The views and opinions expressed in the phaware® podcast do not necessarily reflect the official policy or position of phaware global association. Information on and phaware social media sites is provided for general information only. It is not intended as legal, medical or other professional advice, and should not be relied upon as a substitute for consultations with qualified professionals who are familiar with your individual needs.

2023 sponsorship support was made possible from: CVS Specialty, Enzyvant, Johnson & Johnson, Liquidia Technologies, Inc., Gossamer Bio and Merck & Co, Inc.

To learn more about PH visit phaware® is a 501(c)3 organization. © Copyright 2023. All Rights Reserved.

Oct 17, 2022

Roslyn Rivera, RN, BSN is the Fetal and Pediatric Cardiology Outpatient Nurse Coordinator at the UCLA Children’s Heart Center. Since 2013, Roslyn has volunteered with Camp del Corazon, a nonprofit organization offering year-round activities for children and young adults with CHD.  She holds the role of Nurse Coordinator and as an Advisor for their adult CHD program called PACE. 

In this episode, Roslyn discusses the work of Camp del Corazon and its lasting impact on children and families affected by CHD and Pulmonary Hypertension.

Don't miss CDC's upcoming Family Festival (FAMfest FUNdraiser) October 29th in North Hollywood, CA. You can also participate in the Online Auction (Oct 22-29, 2022). Learn more at: @campdelcorazon

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