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I'm Aware That I'm Rare: the phaware® podcast

A new podcast series devoted to raising global pulmonary hypertension awareness with dynamic stories from PH patients, caregivers and medical professionals from around the world. New Episodes every Tuesday!

Use the search bar above to search episodes by topic. Search "phawareMD" to discover podcasts with medical professionals.

The views and opinions expressed in the phaware® podcast do not necessarily reflect the official policy or position of phaware global association. Information on phaware.global and phaware social media sites is provided for general information only. It is not intended as legal, medical or other professional advice, and should not be relied upon as a substitute for consultations with qualified professionals who are familiar with your individual needs.

2025 Sponsorship support was made possible from: Merck & Co, Inc., Johnson & Johnson, Liquidia Technologies, Inc., Gossamer Bio, and Pulmovant.

To learn more about PH visit www.phaware.global. phaware® is a 501(c)3 organization. © Copyright 2025. All Rights Reserved.

  1. All Episodes
  2. Episode 544 - LaRae Hacker

Episode 544 - LaRae Hacker

Oct 28, 2025

How TBX4Life Is Fueling a Global Collaboration

 LaRae Hacker never set out to become a rare disease advocate—but when her daughter’s TBX4 diagnosis left her feeling helpless, she found power in connection. Discover how TBX4Life became her anchor in uncertainty and why she believes parent-led advocacy is the key to progress in rare disease research.

Learn more about pulmonary hypertension trials at www.phaware.global/clinicaltrials. Follow us on social @phaware Engage for a cure: www.phaware.global/donate #phaware
Share your story: info@phaware.com @TBX4_Life