Apr 15, 2026

She Was Prepared
for Breast Cancer Not for a Rare, Incurable
Disease
At 30, Sherry Rouse went in for a breast cancer screening. What
doctors found instead wasn’t cancer, but was something far rarer,
and potentially fatal: idiopathic pulmonary arterial hypertension
Sherry recounts the emotional rollercoaster of
being...
Apr 14, 2026
She Was Prepared for Breast Cancer Not for a Rare, Incurable
Disease
At 30, Sherry Rouse went in for a breast cancer screening. What
doctors found instead wasn’t cancer, but was something far rarer,
and potentially fatal: idiopathic pulmonary arterial hypertension
Sherry recounts the emotional rollercoaster of
being...
Apr 8, 2026

The Insurance
Plan You Never Knew You Needed
What does a lung
transplant have in common with car insurance? More than you'd
think. Dr. Nicholas Kolaitis shares why seeing a transplant team
early, even if you’re stable, can help protect your
future.
I'm Nicholas Kolaitis from the University of
California,...
Apr 7, 2026
The Insurance
Plan You Never Knew You Needed
What does a lung
transplant have in common with car insurance? More than you'd
think. Dr. Nicholas Kolaitis shares why seeing a transplant team
early, even if you’re stable, can help protect your
future.
Learn more about pulmonary hypertension trials at
Apr 1, 2026

The Most Dangerous Phrase in Rare Disease: “You Look Fine.”
My name is Lala Juarez. I am a support group leader for Northern Utah. I’m also a patient. I was diagnosed with idiopathic pulmonary arterial hypertension in 2015. I had two years of being undiagnosed through, as a lot of patients know, like asthma,...