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I'm Aware That I'm Rare: the phaware® podcast

A new podcast series devoted to raising global pulmonary hypertension awareness with dynamic stories from PH patients, caregivers and medical professionals from around the world. New Episodes every Tuesday!

Use the search bar above to search episodes by topic. Search "phawareMD" to discover podcasts with medical professionals.

The views and opinions expressed in the phaware® podcast do not necessarily reflect the official policy or position of phaware global association. Information on phaware.global and phaware social media sites is provided for general information only. It is not intended as legal, medical or other professional advice, and should not be relied upon as a substitute for consultations with qualified professionals who are familiar with your individual needs.

2026 Sponsorship support was made possible from: Merck & Co, Inc., Johnson & Johnson, Liquidia Technologies, Inc., Gossamer Bio, Pulmovant, Insmed Incorporated and Corsair Pharma, Inc.

To learn more about PH visit www.phaware.global. phaware® is a 501(c)3 organization. © Copyright 2025. All Rights Reserved.

Kathy Ilano - phaware® interview 585

Aug 12, 2026

Misdiagnosed at 19, Married After Heart Failure and Living Moment to Moment

Pulmonary hypertension patient, Kathy Ilano believed she’d never marry. Until she met her husband at her high school reunion. Still recovering from heart failure, carrying grief, fear, and a sodium-restricted diet, Kathy disclosed her illness...


Aug 11, 2026

Misdiagnosed at 19, Married After Heart Failure and Living Moment to Moment

Pulmonary hypertension patient, Kathy Ilano believed she’d never marry. Until she met her husband at her high school reunion. Still recovering from heart failure, carrying grief, fear, and a sodium-restricted diet, Kathy disclosed her illness...


Christina Ryan - phaware® interview 584

Aug 5, 2026

She Was the Caregiver Until Pulmonary Hypertension Made Her the Patient

For Christine Ryan, being ill wasn’t the hardest part, letting others care for her was. Diagnosed with pulmonary hypertension after years of managing scleroderma, she struggled not with weakness, but with surrender. Used to pushing through pain...


Aug 4, 2026

She Was the Caregiver Until Pulmonary Hypertension Made Her the Patient

For Christine Ryan, being ill wasn’t the hardest part, letting others care for her was. Diagnosed with pulmonary hypertension after years of managing scleroderma, she struggled not with weakness, but with surrender. Used to pushing through pain...


Amanda Chickie - phaware® interview 583

Jul 29, 2026


The Dream She Lost at 18 and the Child Who Gave It Back

One of the first questions Amanda Chickie asked after her pulmonary hypertension diagnosis wasn’t about life expectancy, it was about motherhood. The answer devastated her. Told that pregnancy was too dangerous, Amanda reflects on what it means to mourn children...