I'm Aware That I'm Rare: the phaware® podcast

A new podcast series devoted to raising global pulmonary hypertension awareness with dynamic stories from PH patients, caregivers and medical professionals from around the world. New Episodes every Monday!

Use the search bar above to search episodes by topic. Search "phawareMD" to discover podcasts with medical professionals.

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The views and opinions expressed in the phaware® podcast do not necessarily reflect the official policy or position of phaware global association. Information on phaware.global and phaware social media sites is provided for general information only. It is not intended as legal, medical or other professional advice, and should not be relied upon as a substitute for consultations with qualified professionals who are familiar with your individual needs.

2023 sponsorship support was made possible from: CVS Specialty, Enzyvant, Johnson & Johnson, Liquidia Technologies, Inc., Gossamer Bio and Merck & Co, Inc.

Danijela Pešić Transcript

Oct 31, 2016

Danijela Pešić is the founder of PH Serbia. She was diagnosed with pulmonary hypertension as a baby over 38 years ago. Danijela is dedicated to raising PH awareness across Serbia and Europe, on behalf of people living with the disease. She works tirelessly to ensure the availability of approved treatments...

Episode 3 - Danijela Pešić

Oct 31, 2016

Danijela Pešić, founder of PH Serbia, was diagnosed with pulmonary hypertension as a baby over 38 years ago. Danijela is dedicated to raising PH awareness across Serbia and Europe, on behalf of people living with the disease. She works tirelessly to ensure the availability of approved treatments and...

Kevin Lee Burger Transcript

Oct 27, 2016

Kevin Lee Burger shares his story about being diagnosed with pulmonary hypertension, the importance of PH awareness and the reasons that led him to create an online support system to meet the needs of men diagnosed with this rare disease - The PH Men's PHight Club on facebook.

This interview was recorded in June,...

Episode 2 - Kevin Lee Burger

Oct 27, 2016

Andy Sagraves Transcript

Oct 24, 2016

10-year-old pulmonary hypertension patient, Andy Sagraves shares his story. Andy discusses living a life of compromise, theoretical physics and how being diagnosed with a rare disease is a gift.

I am Andrew Sagraves and I am from Nashville, Tennessee. I am 10 years old now, and I have pulmonary hypertension.

I had...