Amanda Spurling Transcript
Mar 31, 2017
Amanda Spurling lives with a very rare disease called pulmonary hypertension. She frequently VLOGs to raise PH awareness and discusses how PH impacts her life as a young mother.
My name is Amanda Spurling and I am from Fort Lauderdale, Florida.
I am a patient. I have idiopathic pulmonary hypertension and I was...
Mar 30, 2017
Amanda Spurling lives with a very rare disease called pulmonary hypertension. She frequently VLOGs to raise PH awareness and discusses how PH impacts her life as a young mother.
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Liz DeVivo Transcript
Mar 28, 2017
In 2000, Liz DeVivo was diagnosed with Scleroderma, a rare and chronic autoimmune disease. The disease attacked her internal organs, causing pulmonary hypertension. Due to the urgency of her condition, she was placed at the top of the transplant list in September 2001. Liz wrote a book (Holding On For Dear Life),...
Mar 27, 2017
In 2000, Liz DeVivo was diagnosed with Scleroderma, a rare and chronic autoimmune disease. The disease attacked her internal organs, causing pulmonary hypertension. Due to the urgency of her condition, she was placed at the top of the transplant list in September 2001. Liz wrote a book (Holding On For Dear Life),...
Pam Kehoe Transcript
Mar 24, 2017
CTEPH patient, Pam Kehoe is a member of the CTEPH Advisory Board (www.CTEPH.com) She discusses her diagnosis and how it was confirmed only after receiving a V/Q (ventilation/perfusion) scan.
I'm Pam Kehoe and I'm from Wisconsin.
My PH story is I had not felt well for a long time and my story probably begins 20 years...