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I'm Aware That I'm Rare: the phaware® podcast

A new podcast series devoted to raising global pulmonary hypertension awareness with dynamic stories from PH patients, caregivers and medical professionals from around the world. New Episodes every Monday!

Use the search bar above to search episodes by topic. Search "phawareMD" to discover podcasts with medical professionals.

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The views and opinions expressed in the phaware® podcast do not necessarily reflect the official policy or position of phaware global association. Information on phaware.global and phaware social media sites is provided for general information only. It is not intended as legal, medical or other professional advice, and should not be relied upon as a substitute for consultations with qualified professionals who are familiar with your individual needs.

2023 sponsorship support was made possible from: CVS Specialty, Enzyvant, Johnson & Johnson, Liquidia Technologies, Inc., Gossamer Bio and Merck & Co, Inc.

To learn more about PH visit www.phaware.global. phaware® is a 501(c)3 organization. © Copyright 2023. All Rights Reserved.

Cheryl Wegener - phaware® interview 401

Jan 31, 2023

In this interview, recorded on the 3rd anniversary of her daughter Madison's passing, Cheryl Wegener, discusses how life has changed in the three years since Madison lost her battle with PH on January 19, 2020 and why they continue to fight this terrible disease in her honor.

You can also read more about Madison on...


Jan 30, 2023

In this episode, recorded on the 3rd anniversary of her daughter Madison's passing, Cheryl Wegener, discusses how life has changed in the three years since Madison lost her battle with PH on January 19, 2020 and why they continue to fight this terrible disease in her honor.

You can also read more about Madison on her


Dale Dedrick - phaware® interview 400

Jan 25, 2023

Dale Dedrick is a retired orthopedic surgeon who was diagnosed with lupus and pulmonary hypertension. In this episode, Dale, former United States Paralympic Equestrian Team member, discusses an infection that resulted in a partial amputation of her foot and why it's important "to get back on the horse."

My name is Dale...


Jan 24, 2023

Dale Dedrick is a retired orthopedic surgeon who was diagnosed with lupus and pulmonary hypertension. In this episode, Dale, former United States Paralympic Equestrian Team member, discusses an infection that resulted in a partial amputation of her foot and why it's important "to get back on the horse."

Learn more about...


Roslyn Rivera, RN, BSN - phaware® interview 399

Jan 17, 2023

Roslyn Rivera, RN, BSN is the Fetal and Pediatric Cardiology Outpatient Nurse Coordinator at the UCLA Children’s Heart Center. Since 2013, Roslyn has volunteered with Camp del Corazon, a nonprofit organization offering year-round activities for children and young adults with CHD.  She holds the role of...