Dec 31, 2025

You Can Grieve and Still Fight: Love, Loss, and Living with PAH
She cried for the life she lost. Then, she fought for the one
she has. PAH patient, Jasmine Wells discusses what it really means
to grieve the old you while finding purpose in the new. From
navigating relationships, infections, and fear of
transplant,...
Dec 30, 2025
You Can Grieve and Still Fight: Love, Loss, and Living with PAH
She cried for the life she lost. Then, she fought for the one
she has. PAH patient, Jasmine Wells discusses what it really means
to grieve the old you while finding purpose in the new. From
navigating relationships, infections, and fear of
transplant,...
Dec 24, 2025

The Pulse of a Fighter:
Survival, Stigma, and Shaking Up
Healthcare
They
told him he had months to live. He used them to rewrite the rules.
Kevin Allen survived near-death, systemic medical neglect, and an
invisible disability most physicians don’t understand. Today, he’s
pushing policy, pressuring universities,
and...
Dec 23, 2025
The Pulse of a Fighter:
Survival, Stigma, and Shaking Up
Healthcare
They
told him he had months to live. He used them to rewrite the rules.
Kevin Allen survived near-death, systemic medical neglect, and an
invisible disability most physicians don’t understand. Today, he’s
pushing policy, pressuring universities,
and...
Dec 17, 2025

Why Families Belong at the Table: PHriends of the PPHNet
Dr. Russel Hirsch breaks down the core pillars of the PPHNet, from shared research to consistent care standards, and explains why the next chapter in pediatric pulmonary hypertension care must be written with families, not just for them through the PHriends