I'm Aware That I'm Rare: the phaware® podcast

A new podcast series devoted to raising global pulmonary hypertension awareness with dynamic stories from PH patients, caregivers and medical professionals from around the world. New Episodes every Tuesday!

Use the search bar above to search episodes by topic. Search "phawareMD" to discover podcasts with medical professionals.

The views and opinions expressed in the phaware® podcast do not necessarily reflect the official policy or position of phaware global association. Information on phaware.global and phaware social media sites is provided for general information only. It is not intended as legal, medical or other professional advice, and should not be relied upon as a substitute for consultations with qualified professionals who are familiar with your individual needs.

2025 Sponsorship support was made possible from: Merck & Co, Inc., Johnson & Johnson, Liquidia Technologies, Inc., Gossamer Bio, and Pulmovant.

Jeffrey Whitsett, MD - phaware® interview 561

Feb 25, 2026

Cracking the Code: How Genetics Is Rewriting Neonatal Medicine

Dr. Jeffrey Whitsett reflects on five decades in neonatal care, tracing the evolution from limited support for preemies to today’s cutting-edge genetic discoveries. Discover how rare gene mutations like TBX4 are reshaping our understanding of lung...

Episode 561 - Jeffrey Whitsett, MD

Feb 24, 2026

Cracking the Code: How Genetics Is Rewriting Neonatal Medicine

Dr. Jeffrey Whitsett reflects on five decades in neonatal care, tracing the evolution from limited support for preemies to today’s cutting-edge genetic discoveries. Discover how rare gene mutations like TBX4 are reshaping our understanding of lung...

Luke Stockdale - phaware® interview 560

Feb 18, 2026

From Knee Pain to Gene Discovery: One Family’s Unexpected Diagnosis

What started as routine investigations into hereditary knee problems turned into a life-altering discovery for Luke Stockdale and his family — a TBX4 gene mutation linked to pulmonary arterial hypertension (PAH). In this episode, Luke shares...

Episode 560 - Luke Stockdale

Feb 17, 2026

From Knee Pain to Gene Discovery: One Family’s Unexpected Diagnosis

Drs. Matina Prapa and Olivier Danhaive - phaware® interview 559

Feb 11, 2026

How a Global Team Is Rewriting the TBX4 Playbook

Rare diseases thrive in isolation. TBX4Life is changing that. In this episode, Drs. Prapa and Danhaive share how international collaboration is creating real-time change for patients. From newborn screening to natural history studies to rethinking how we talk about...