Mar 31, 2026
The Most Dangerous Phrase in Rare Disease: “You Look Fine.”
Diagnosed with idiopathic pulmonary arterial hypertension in her early 20s after years of being dismissed, Lala Juarez knows what it’s like to be told “you look fine” while fighting for breath. In this deeply honest conversation, she shares her...
Angela Brown - phaware® interview 565
Mar 25, 2026
The Daily
Discipline of PH: Living by the Liter and Label
Most people don’t
count every sip of water or every grain of salt. Angela Brown does.
This episode dives into the daily discipline required to live with
pulmonary hypertension—from navigating restaurant menus to
surviving a exotic vacations in
sweltering...
Mar 24, 2026
The Daily
Discipline of PH: Living by the Liter and Label
Most people don’t
count every sip of water or every grain of salt. Angela Brown does.
This episode dives into the daily discipline required to live with
pulmonary hypertension—from navigating restaurant menus to
surviving a exotic vacations in
sweltering...
Neal McDermott and Steve Mathai, MD - phaware® interview 564
Mar 18, 2026
Two Rare
Diagnoses, One Powerful Partnership
Scleroderma and
PAH: Patient, Neal McDermott and Dr. Steve Mathai unpack how the
intersection of two rare diseases requires trust, early action, and
deeply personalized care. This episode explores what happens when
medical expertise meets patient resilience, and
why...
Mar 17, 2026
Two Rare Diagnoses, One Powerful
Partnership
Scleroderma and PAH: Patient, Neal McDermott and Dr. Steve Mathai
unpack how the intersection of two rare diseases requires trust,
early action, and deeply personalized care. This episode explores
what happens when medical expertise meets patient resilience, and
why...