Shannon O'Donnell - phaware® interview 383
Sep 6, 2022
Pulmonary Hypertension patient Shannon O'Donnell was diagnosed with PH at age six. Shannon discusses the importance of PH kids getting to attend summer camps geared to children impacted with rare disease, including Paul and Joanne Newman's The Hole In the Wall Gang Camp and Serious Fun Network.
My name is Shannon...
Sep 5, 2022
Pulmonary Hypertension patient Shannon O'Donnell was diagnosed with PH at age six. Shannon discusses the importance of PH kids getting to attend summer camps geared to children impacted with rare disease, including Paul and Joanne Newman's The Hole In the Wall Gang Camp and Serious Fun Network.
Learn more about...
Larissa Domenichelli - phaware® interview 382
Aug 30, 2022
Pulmonary hypertension patient, Larissa Domenichelli discusses her rare disease diagnosis and why she feels like a 73 year old trapped in a 37 year old's body.
My name is Larissa Domenichelli. I'm from Cloverdale, California. My connection with pulmonary hypertension is I was diagnosed in November of 2020. I was in...
Aug 29, 2022
In this episode, pulmonary hypertension patient, Larissa Domenichelli discusses her rare disease diagnosis and why she feels like a 73 year old trapped in a 37 year old's body.
Learn more about pulmonary hypertension trials at www.phaware.global/clinicaltrials. Never miss an episode with the phaware®...
Tina Gardner - phaware® interview 381
Aug 23, 2022
Pulmonary hypertension patient, Tina Gardner had never heard of PH when her mom was diagnosed in 1994. 28 years later, she's all too familiar with the disease after she, her nephew, her niece as well as her great nephew have been diagnosed with this rare disease. Tina discusses the importance of support...