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I'm Aware That I'm Rare: the phaware® podcast

A new podcast series devoted to raising global pulmonary hypertension awareness with dynamic stories from PH patients, caregivers and medical professionals from around the world. New Episodes every Monday!

Use the search bar above to search episodes by topic. Search "phawareMD" to discover podcasts with medical professionals.

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The views and opinions expressed in the phaware® podcast do not necessarily reflect the official policy or position of phaware global association. Information on phaware.global and phaware social media sites is provided for general information only. It is not intended as legal, medical or other professional advice, and should not be relied upon as a substitute for consultations with qualified professionals who are familiar with your individual needs.

To learn more about PH visit www.phaware.global. phaware® is a 501(c)3 organization. © Copyright 2015. All Rights Reserved.

Generously Supported in part by Actelion Pharmaceuticals US, Inc., Bayer, United Therapeutics Corporation, Acceleron, CVS Health & PhaseBio Pharmaceuticals.

Shannon O'Donnell - phaware® interview 383

Sep 6, 2022

Pulmonary Hypertension patient Shannon O'Donnell was diagnosed with PH at age six.  Shannon discusses the importance of PH kids getting to attend summer camps geared to children impacted with rare disease, including Paul and Joanne Newman's The Hole In the Wall Gang Camp and Serious Fun Network.

My name is Shannon...


Sep 5, 2022

Pulmonary Hypertension patient Shannon O'Donnell was diagnosed with PH at age six.  Shannon discusses the importance of PH kids getting to attend summer camps geared to children impacted with rare disease, including Paul and Joanne Newman's The Hole In the Wall Gang Camp and Serious Fun Network.

Learn more about...


Larissa Domenichelli - phaware® interview 382

Aug 30, 2022

Pulmonary hypertension patient, Larissa Domenichelli discusses her rare disease diagnosis and why she feels like a 73 year old trapped in a 37 year old's body.

My name is Larissa Domenichelli. I'm from Cloverdale, California. My connection with pulmonary hypertension is I was diagnosed in November of 2020. I was in...


Aug 29, 2022

In this episode, pulmonary hypertension patient, Larissa Domenichelli discusses her rare disease diagnosis and why she feels like a 73 year old trapped in a 37 year old's body.

Learn more about pulmonary hypertension trials at www.phaware.global/clinicaltrials. Never miss an episode with the phaware®...


Tina Gardner - phaware® interview 381

Aug 23, 2022

Pulmonary hypertension patient, Tina Gardner had never heard of PH when her mom was diagnosed in 1994. 28 years later, she's all too familiar with the disease after she, her nephew, her niece as well as her great nephew have been diagnosed with this rare disease. Tina discusses the importance of support...