I'm Aware That I'm Rare: the phaware® podcast

A new podcast series devoted to raising global pulmonary hypertension awareness with dynamic stories from PH patients, caregivers and medical professionals from around the world. New Episodes every Tuesday!

Use the search bar above to search episodes by topic. Search "phawareMD" to discover podcasts with medical professionals.

The views and opinions expressed in the phaware® podcast do not necessarily reflect the official policy or position of phaware global association. Information on phaware.global and phaware social media sites is provided for general information only. It is not intended as legal, medical or other professional advice, and should not be relied upon as a substitute for consultations with qualified professionals who are familiar with your individual needs.

2025 Sponsorship support was made possible from: Merck & Co, Inc., Johnson & Johnson, Liquidia Technologies, Inc., Gossamer Bio, and Pulmovant.

Russel Hirsch, MD - phaware® interview 551

Dec 17, 2025

Why Families Belong at the Table: PHriends of the PPHNet

Dr. Russel Hirsch breaks down the core pillars of the PPHNet, from shared research to consistent care standards, and explains why the next chapter in pediatric pulmonary hypertension care must be written with families, not just for them through the PHriends

Episode 551 - Russel Hirsch, MD

Dec 16, 2025

Why Families Belong at the Table: PHriends of the PPHNet

Dr. Russel Hirsch breaks down the core pillars of the PPHNet, from shared research to consistent care standards, and explains why the next chapter in pediatric pulmonary hypertension care must be written with families, not just for them through the PHriends

LaRae Hacker - phaware® interview 544

Oct 29, 2025

How TBX4Life Is Fueling a Global Collaboration

LaRae Hacker never set out to become a rare disease advocate—but when her daughter’s TBX4 diagnosis left her feeling helpless, she found power in connection. Discover how TBX4Life became her anchor in uncertainty and why she believes parent-led advocacy is the key to...

Drs. Kevin and Heather Shannon - phaware® interview 510

Mar 4, 2025

Co-Founder and Board Member, Drs. Kevin and Heather Shannon share the inspiring story of Camp del Corazon — a transformative summer camp for children with heart disease. Hear how one patient’s journey ignited a movement to create a safe, empowering space where kids can embrace their scars, form lifelong...

Episode 510 - Drs. Kevin and Heather Shannon

Mar 3, 2025