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I'm Aware That I'm Rare: the phaware® podcast

A new podcast series devoted to raising global pulmonary hypertension awareness with dynamic stories from PH patients, caregivers and medical professionals from around the world. New Episodes every Tuesday!

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The views and opinions expressed in the phaware® podcast do not necessarily reflect the official policy or position of phaware global association. Information on phaware.global and phaware social media sites is provided for general information only. It is not intended as legal, medical or other professional advice, and should not be relied upon as a substitute for consultations with qualified professionals who are familiar with your individual needs.

2026 Sponsorship support was made possible from: Merck & Co, Inc., Johnson & Johnson, Liquidia Technologies, Inc., Gossamer Bio, Pulmovant, Insmed Incorporated and Corsair Pharma, Inc.

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  1. All Episodes
  2. Episode 577 - Carla Kinsey

Episode 577 - Carla Kinsey

Jun 16, 2026

She Went Looking for Answers and Ended Up Building a Lifeline

 Before Zoom, before Facebook groups, pulmonary hypertension patient, Carla Kinsey, had only a voice on a phone line. That loneliness pushed her to do something terrifying: start a support group herself. What began as a need for connection became a lifeline for countless patients navigating rare disease.

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