Preview Mode Links will not work in preview mode

I'm Aware That I'm Rare: the phaware® podcast

A new podcast series devoted to raising global pulmonary hypertension awareness with dynamic stories from PH patients, caregivers and medical professionals from around the world. New Episodes every Monday & Thursday!

Use the search bar above to search episodes by topic. Search "phawareMD" to discover podcasts with medical professionals.

Get our custom smartphone app (for iPhone™, Android™, and Amazon™ devices). It's the most convenient way to access the phaware™ podcast.

The views and opinions expressed in the phaware® podcast do not necessarily reflect the official policy or position of phaware global association. Information on phaware.global and phaware social media sites is provided for general information only. It is not intended as legal, medical or other professional advice, and should not be relied upon as a substitute for consultations with qualified professionals who are familiar with your individual needs.

To learn more about PH visit www.phaware.global. phaware® is a 501(c)3 organization. © Copyright 2015. All Rights Reserved.

Generously Supported in part by Actelion Pharmaceuticals US, Inc., Bayer Healthcare & Reata Pharmaceuticals.

Amanda Spurling Transcript

Mar 31, 2017

Amanda Spurling lives with a very rare disease called pulmonary hypertension. She frequently VLOGs to raise PH awareness and discusses how PH impacts her life as a young mother.

My name is Amanda Spurling and I am from Fort Lauderdale, Florida.

I am a patient. I have idiopathic pulmonary hypertension and I was...


Mar 30, 2017

Amanda Spurling lives with a very rare disease called pulmonary hypertension. She frequently VLOGs to raise PH awareness and discusses how PH impacts her life as a young mother.

Listen to “I’m Aware That I’m Rare: the phaware™ podcast” at www.phaware.global/podcast. Learn more about pulmonary hypertension at


Liz DeVivo Transcript

Mar 28, 2017

 

In 2000, Liz DeVivo was diagnosed with Scleroderma, a rare and chronic autoimmune disease. The disease attacked her internal organs, causing pulmonary hypertension. Due to the urgency of her condition, she was placed at the top of the transplant list in September 2001. Liz wrote a book (Holding On For Dear Life),...


Mar 27, 2017

In 2000, Liz DeVivo was diagnosed with Scleroderma, a rare and chronic autoimmune disease. The disease attacked her internal organs, causing pulmonary hypertension. Due to the urgency of her condition, she was placed at the top of the transplant list in September 2001. Liz wrote a book (Holding On For Dear Life),...


Pam Kehoe Transcript

Mar 24, 2017

CTEPH patient, Pam Kehoe is a member of the CTEPH Advisory Board (www.CTEPH.com)  She discusses her diagnosis and how it was confirmed only after receiving a V/Q (ventilation/perfusion) scan.

I'm Pam Kehoe and I'm from Wisconsin.

My PH story is I had not felt well for a long time and my story probably begins 20 years...