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I'm Aware That I'm Rare: the phaware® podcast

A new podcast series devoted to raising global pulmonary hypertension awareness with dynamic stories from PH patients, caregivers and medical professionals from around the world. New Episodes every Monday & Thursday!

Use the search bar above to search episodes by topic. Search "phawareMD" to discover podcasts with medical professionals.

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The views and opinions expressed in the phaware® podcast do not necessarily reflect the official policy or position of phaware global association. Information on phaware.global and phaware social media sites is provided for general information only. It is not intended as legal, medical or other professional advice, and should not be relied upon as a substitute for consultations with qualified professionals who are familiar with your individual needs.

To learn more about PH visit www.phaware.global. phaware® is a 501(c)3 organization. © Copyright 2015. All Rights Reserved.

Generously Supported in part by Actelion Pharmaceuticals US, Inc., Bayer & CVS Health.

Lori Heaton - phaware® interview 211

Nov 30, 2018

Pulmonary hypertension caregiver and author, Lori Heaton discusses her daughter Maddie's twenty-year journey of courage and strength living with PH. Maddie conquered cancer and lived on to receive two separate lung transplants. Lori details wisdom learned being Maddie’s caregiver through hard-gained lessons which she...


Nov 29, 2018

Pulmonary hypertension caregiver and author, Lori Heaton discusses her daughter Maddie's twenty-year journey of courage and strength living with PH. Maddie conquered cancer and lived on to receive two separate lung transplants. Lori details wisdom learned being Maddie’s caregiver through hard-gained lessons which she...


Kristine Ritchie - phaware® interview 210

Nov 27, 2018

Pediatric PH caregiver Kristine Ritchie discusses her son Brendan’s pulmonary hypertension diagnosis.  Kristine talks about the importance of advocating for her child, the power of online support groups and struggle of navigating a new normal.

My name is Kristine Ritchie, I am from the Central Interior of BC in West...


Nov 26, 2018

Pediatric PH caregiver Kristine Ritchie discusses her son Brendan’s pulmonary hypertension diagnosis.  Kristine talks about the importance of advocating for her child, the power of online support groups and struggle of navigating a new normal.

Learn more about pulmonary hypertension trials at


Sonya Collins - phaware® interview 209

Nov 23, 2018

Diagnosed with IPAH almost 16 years ago, Canadian Sonya Collins discusses spending about four years questioning her shortness of breath (SOB) and severe fluid retention. Sonya details why she became a PHA Canada Ambassador and how her short and long term goals have shifted over the years thanks to her PH therapies.

My...