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I'm Aware That I'm Rare: the phaware® podcast

A new podcast series devoted to raising global pulmonary hypertension awareness with dynamic stories from PH patients, caregivers and medical professionals from around the world. New Episodes every Monday & Thursday!

Use the search bar above to search episodes by topic. Search "phawareMD" to discover podcasts with medical professionals.

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The views and opinions expressed in the phaware® podcast do not necessarily reflect the official policy or position of phaware global association. Information on phaware.global and phaware social media sites is provided for general information only. It is not intended as legal, medical or other professional advice, and should not be relied upon as a substitute for consultations with qualified professionals who are familiar with your individual needs.

To learn more about PH visit www.phaware.global. phaware® is a 501(c)3 organization. © Copyright 2015. All Rights Reserved.

Generously Supported in part by Actelion Pharmaceuticals US, Inc., Bayer, United Therapeutics Corporation, CVS Health & PhaseBio Pharmaceuticals.

Carys and Paisley Dempsey - phaware® interview 309

Feb 21, 2020

Sisters Paisley Dempsey (10) and Carys Dempsey (11) discuss their mother Nicole’s PH diagnosis and their roles as caregivers. Nicole served as a PHA Canada Ambassador from 2014-16, before being elected to the Board of Directors in 2017. She was diagnosed with idiopathic pulmonary arterial hypertension (IPAH) in 2013....


Feb 20, 2020

Sisters Paisley Dempsey (10) and Carys Dempsey (11) discuss their mother Nicole’s PH diagnosis and their roles as caregivers. Nicole served as a PHA Canada Ambassador from 2014-16, before being elected to the Board of Directors in 2017. She was diagnosed with idiopathic pulmonary arterial hypertension (IPAH) in 2013....


Alex Cowie - phaware® interview 308

Feb 18, 2020

Alex Cowie lives in the South West Coast of Scotland, UK with his partner Jo. Alex was diagnosed with Hereditary Pulmonary Arterial Hypertension in August 2016. He has participated in 4 clinical trials to date. Alex's daughter, Erika, lost her battle with PH in 2016 following her 18th birthday.

My name's Alex Cowie and...


Feb 17, 2020

Alex Cowie lives in the South West Coast of Scotland, UK with his partner Jo. Alex was diagnosed with Hereditary Pulmonary Arterial Hypertension in August 2016. He has participated in 4 clinical trials to date. Alex's daughter, Erika, lost her battle with PH in 2016 following her 18th birthday.

Learn more about...


Cheryl Wegener - phaware® interview 307

Jan 31, 2020

We are heartbroken that our friend, Madison Wegener, lost her battle with PH on January 19, 2020. In this episode, Madison 's mother, Cheryl discusses the importance of early diagnosis, the impact PH has on the entire family how journaling became a teaching tool for everyone in their lives.

My name is Cheryl Wegener...