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I'm Aware That I'm Rare: the phaware® podcast

A new podcast series devoted to raising global pulmonary hypertension awareness with dynamic stories from PH patients, caregivers and medical professionals from around the world. New Episodes every Monday & Thursday!

Use the search bar above to search episodes by topic. Search "phawareMD" to discover podcasts with medical professionals.

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The views and opinions expressed in the phaware® podcast do not necessarily reflect the official policy or position of phaware global association. Information on phaware.global and phaware social media sites is provided for general information only. It is not intended as legal, medical or other professional advice, and should not be relied upon as a substitute for consultations with qualified professionals who are familiar with your individual needs.

To learn more about PH visit www.phaware.global. phaware® is a 501(c)3 organization. © Copyright 2015. All Rights Reserved.

Generously Supported in part by Actelion Pharmaceuticals US, Inc., Bayer, United Therapeutics Corporation & CVS Health.

Shannin Strom-Henry - phaware® interview 274

Aug 20, 2019

Pediatric PH Caregiver Shannin Strom-Henry discusses her daughter Zoe's congenital diaphragmatic hernia and pulmonary hypertension diagnosis. She describes how being a rabid researcher, collaborating with her PH care team and the power of parent online support is helping Zoe (11) lead as normal a life as possible.

 My...


Aug 19, 2019

Pediatric PH Caregiver Shannin Strom-Henry discusses her daughter Zoe's congenital diaphragmatic hernia and pulmonary hypertension diagnosis. She describes how being a rabid researcher, collaborating with her PH care team and the power of parent online support is helping Zoe (11) lead as normal a life as possible.

Learn...


Carl Hicks - phaware® interview 273

Aug 16, 2019

Carl Hicks is a beloved member of the pulmonary hypertension community and tireless advocate for patients and caregivers alike. Carl is a combat-decorated U.S. Army Airborne Ranger Officer who served our country for nearly 25 years. His daughter Meaghan was diagnosed with idiopathic arterial pulmonary hypertension...


Aug 15, 2019

Carl Hicks is a beloved member of the pulmonary hypertension community and tireless advocate for patients and caregivers alike. Carl is a combat-decorated U.S. Army Airborne Ranger Officer who served our country for nearly 25 years. His daughter Meaghan was diagnosed with idiopathic arterial pulmonary hypertension while...


Suzanne Ransom - phaware® interview 272

Aug 13, 2019

Pediatric PH Caregiver Suzanne Ransom on advocating for her daughter's rare disease diagnosis and adjusting to her "level of hard."

My name is Suzanne Ransom and I am a pulmonary hypertension caregiver.

I was pregnant and I was about 27 weeks. When they were doing the measurements, they're like, "Your baby seems a bit...