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I'm Aware That I'm Rare: the phaware® podcast

A new podcast series devoted to raising global pulmonary hypertension awareness with dynamic stories from PH patients, caregivers and medical professionals from around the world. New Episodes every Monday & Thursday!

Use the search bar above to search episodes by topic. Search "phawareMD" to discover podcasts with medical professionals.

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The views and opinions expressed in the phaware® podcast do not necessarily reflect the official policy or position of phaware global association. Information on phaware.global and phaware social media sites is provided for general information only. It is not intended as legal, medical or other professional advice, and should not be relied upon as a substitute for consultations with qualified professionals who are familiar with your individual needs.

To learn more about PH visit www.phaware.global. phaware® is a 501(c)3 organization. © Copyright 2015. All Rights Reserved.

Generously Supported in part by Actelion Pharmaceuticals US, Inc., Bayer & CVS Health.

Mar 21, 2019

In this episode, pulmonary hypertension patient Joellen Brown discusses being born with a hole in her heart in 1956 that developed into a PH diagnosis in 2009 and the importance of support groups and PH research.

My name is Joellen Brown, and I am a pulmonary hypertension patient.

I am from Columbus, Ohio. I was...


Hollie Satona - phaware® interview 230

Mar 19, 2019

Pediatric pulmonary hypertension caregiver, Hollie Satona discusses her son Joelan's PH diagnosis and the challenge of juggling caregiving because three of her four children are impacted by rare disease and special needs.

I'm Hollie Satona and I am the parent and caregiver of my son who is eight years old, Joelan, who...


Mar 18, 2019

In this episode, pediatric pulmonary hypertension caregiver, Hollie Satona discusses her son Joelan's PH diagnosis and the challenge of juggling caregiving because three of her four children are impacted by rare disease and special needs.

Learn more about pulmonary hypertension trials at


Barbara Thompson - phaware® interview 229

Mar 15, 2019

Pulmonary hypertension patient Barbara Thompson discusses why she wears zebra clothing 365 days a year and her long road through 14 doctors before a young grad student gave her a proper PH diagnosis.

Hi, I'm Barbara Thompson. I'm a pulmonary hypertension patient.

We used to do weddings as a family business. We did...


Mar 14, 2019

In this episode, pulmonary hypertension patient Barbara Thompson discusses why she wears zebra clothing 365 days a year and her long road through 14 doctors before a young grad student gave her a proper PH diagnosis.

Learn more about pulmonary hypertension trials at www.phaware.global/clinicaltrials. Never miss an...