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I'm Aware That I'm Rare: the phaware® podcast

A new podcast series devoted to raising global pulmonary hypertension awareness with dynamic stories from PH patients, caregivers and medical professionals from around the world. New Episodes every Monday & Thursday!

Use the search bar above to search episodes by topic. Search "phawareMD" to discover podcasts with medical professionals.

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The views and opinions expressed in the phaware® podcast do not necessarily reflect the official policy or position of phaware global association. Information on phaware.global and phaware social media sites is provided for general information only. It is not intended as legal, medical or other professional advice, and should not be relied upon as a substitute for consultations with qualified professionals who are familiar with your individual needs.

To learn more about PH visit www.phaware.global. phaware® is a 501(c)3 organization. © Copyright 2015. All Rights Reserved.

Generously Supported in part by Actelion Pharmaceuticals US, Inc., Bellerophon Therapeutics & CVS Health.

Jessica York - phaware® interview 193

Sep 28, 2018

Jessica York is a pediatric pulmonary hypertension caregiver to her 6 year old daughter Haylee.  In this episode she discusses Hay's diagnosis and the importance of pediatric PH research.

Click here to visit Haylee's PHun Walk 4 Hay page.

 My name is Jessica York and I'm a pulmonary hypertension caregiver.

We knew...


Sep 27, 2018

Jessica York is a pediatric pulmonary hypertension caregiver to her 6 year old daughter Haylee.  In this episode she discusses Hay's diagnosis and the importance of pediatric PH research.

Click here to visit Haylee's PHun Walk 4 Hay page.

Learn more about clinical trials at: www.phaware.global/clinicaltrials Never miss...


Tom Krohn - phaware® interview 192

Sep 25, 2018

Tom Krohn is the Chief Development Officer at Antidote. In this episode, Tom details a collaboration between phaware global association® and Antidote Technologies to accelerate lung disease research. This partnership provides pharmaceutical companies with end-to-end clinical trial recruitment services through an...


Sep 24, 2018

Tom Krohn is the Chief Development Officer at Antidote. In this episode, Tom details a collaboration between phaware global association® and Antidote Technologies to accelerate lung disease research. This partnership provides pharmaceutical companies with end-to-end clinical trial recruitment services through an...


Maleen Fischer - phaware® interview 191

Sep 21, 2018

At the age of three, Maleen Fischer was diagnosed with pulmonary hypertension and, as there was no treatment for this fatal disease at the time in Austria, doctors sent her home. Her life expectancy was only a few years. Now, 20 years later, Maleen discusses early diagnosis, the joy of graduating college and the...