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I'm Aware That I'm Rare: the phaware® podcast

A new podcast series devoted to raising global pulmonary hypertension awareness with dynamic stories from PH patients, caregivers and medical professionals from around the world. New Episodes every Monday & Thursday!

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Generously Supported in part by Actelion Pharmaceuticals US, Inc., Bellerophon Therapeutics & CVS Health.

Jan 5, 2017

Pediatric pulmonary hypertension caregiver, Jennica Clasby shares her family's story. Jennica discusses the challenges of moving across country to sea level and leaving their support system behind in Colorado.

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Karen
almost two years ago

Loved hearing the back story to the present. Well done Jennicca. One strong mama!'

Gary Dall
almost two years ago

Hi Jen. I am so proud of you and the way you are working through this terrible problem.
My prayers are with you and I pray for the best for you and your family.

gary

Betsy Friedman
almost two years ago

Jennica-
I loved hearing your pod cast! My daughter Caroline is 13 yrs old and was diagnosed at 6 months old with PAH. Its been a long road as you know but I love to hear how others live with this very rare life altering disease. We live 1 hr from a Hole in the Wall Gang Camp (ASHFORD,CT) which can manage a PH kid for a week of sleep away camp. They also have a week at the end of the summer that is just reserved for the siblings of the kids the camp serve. My younger daughter went for the first time this summer. It was amazing for her to be with so many other siblings of kids who have medical problems.

Lee Wright
almost two years ago

Thank you for sharing this story.It actually brought chills to my bones
and tears to my eyes.You and Brandon have a sweet little gal.Every time I
pass by her she always has a smile on
her face and always waves at me.We all
wish her well along with your entire family.You and Brandon are doing a
amazing job with a sweet child

Lee Wright
almost two years ago

Thank you for sharing this story.It actually brought chills to my bones
and tears to my eyes.You and Brandon have a sweet little gal.Every time I
pass by her she always has a smile on
her face and always waves at me.We all
wish her well along with your entire family.You and Brandon are doing a
amazing job with a sweet child

monica
almost two years ago

Jennica you ARE rare. You are a rockstar!! :)