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I'm Aware That I'm Rare: the phaware® podcast

A new podcast series devoted to raising global pulmonary hypertension awareness with dynamic stories from PH patients, caregivers and medical professionals from around the world. New Episodes every Monday!

Use the search bar above to search episodes by topic. Search "phawareMD" to discover podcasts with medical professionals.

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The views and opinions expressed in the phaware® podcast do not necessarily reflect the official policy or position of phaware global association. Information on phaware.global and phaware social media sites is provided for general information only. It is not intended as legal, medical or other professional advice, and should not be relied upon as a substitute for consultations with qualified professionals who are familiar with your individual needs.

To learn more about PH visit www.phaware.global. phaware® is a 501(c)3 organization. © Copyright 2015. All Rights Reserved.

Generously Supported in part by Actelion Pharmaceuticals US, Inc., Bayer, United Therapeutics Corporation, Acceleron, CVS Health & PhaseBio Pharmaceuticals.

Chandani Dezure, MD - phaware® interview 385 (Part 2)

Sep 20, 2022

Board certified pediatrician and mother to a young child with idiopathic PAH, Chandani DeZure, MD, shares advice & tips for parents navigating this rare diagnosis and offers a unique perspective from both the patient/caregiver and physician side.

My name is Chandani DeZure. I'm a board certified pediatrician. I’m...


Sep 19, 2022

In this episode, board certified pediatrician and mother to a young child with idiopathic PAH, Chandani DeZure, MD, shares advice & tips for parents navigating this rare diagnosis and offers a unique perspective from both the patient/caregiver and physician side.

Learn more about pulmonary hypertension trials at 


Chandani Dezure, MD - phaware® interview 384 (Part 1)

Sep 13, 2022

In this episode, Chandani DeZure, MD, a board certified pediatrician and mother to a young child with idiopathic PAH,  shares the heart-wrenching journey of her son's rare disease diagnosis during the height of the COVID crisis. She details physical and emotional toll it has taking on her son and family.

My name's Dr....


Sep 12, 2022

In this episode, Chandani DeZure, MD, a board certified pediatrician and mother to a young child with idiopathic PAH,  shares the heart-wrenching journey of her son's rare disease diagnosis during the height of the COVID crisis. She details physical and emotional toll it has taking on her son and family.

Learn more...


Shannon O'Donnell - phaware® interview 383

Sep 6, 2022

Pulmonary Hypertension patient Shannon O'Donnell was diagnosed with PH at age six.  Shannon discusses the importance of PH kids getting to attend summer camps geared to children impacted with rare disease, including Paul and Joanne Newman's The Hole In the Wall Gang Camp and Serious Fun Network.

My name is Shannon...