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I'm Aware That I'm Rare: the phaware® podcast

A new podcast series devoted to raising global pulmonary hypertension awareness with dynamic stories from PH patients, caregivers and medical professionals from around the world. New Episodes every Monday!

Use the search bar above to search episodes by topic. Search "phawareMD" to discover podcasts with medical professionals.

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The views and opinions expressed in the phaware® podcast do not necessarily reflect the official policy or position of phaware global association. Information on phaware.global and phaware social media sites is provided for general information only. It is not intended as legal, medical or other professional advice, and should not be relied upon as a substitute for consultations with qualified professionals who are familiar with your individual needs.

2023 sponsorship support was made possible from: CVS Specialty, Enzyvant, Johnson & Johnson, Liquidia Technologies, Inc., Gossamer Bio and Merck & Co, Inc.

To learn more about PH visit www.phaware.global. phaware® is a 501(c)3 organization. © Copyright 2023. All Rights Reserved.

Jo-Anne Mainwood - phaware® interview 433

Sep 26, 2023

Pulmonary hypertension patient, Jo-Anne Mainwood, is a Canadian school teacher who couldn’t keep up with her students, friends and family. After a long journey of misdiagnosis, Jo-Anne details why PH is not a one-size-fits-all disease.

My name is Jo-Anne Mainwood. I'm from Ottawa. I've had diagnosed pulmonary...


Sep 25, 2023

Pulmonary hypertension patient, Jo-Anne Mainwood, is a Canadian school teacher who couldn’t keep up with her students, friends and family. After a long journey of misdiagnosis, Jo-Anne details why PH is not a one-size-fits-all disease.

Learn more about pulmonary hypertension trials at


Jennifer Gendron - phaware® interview 432

Sep 19, 2023

On the 14th anniversary of her son's life-saving lung transplant, Canadian pulmonary hypertension care partner, Jennifer Gendron discusses how the PH landscape has changed over the past 20 years and life post-surgery.

My name is Jennifer Gendron and I'm from a small town in New Brunswick, Canada. My oldest son was...


Sep 18, 2023

On the 14th anniversary of her son's life-saving lung transplant, Canadian pulmonary hypertension care partner, Jennifer Gendron discusses how the PH landscape has changed over the past 20 years and life post-surgery.

Learn more about pulmonary hypertension trials at www.phaware.global/clinicaltrials. Follow us on...


Don Downey - phaware® interview 431

Sep 12, 2023

Canadian pulmonary hypertension care partner, Don Downey 

My name's Don Downey. I'm from Calgary, Alberta. My wife, Kathy, was diagnosed with idiopathic pulmonary hypertension in March of 2020. It actually goes back way before that. She started having problems in December of 2015. We'd gone many times to her...