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I'm Aware That I'm Rare: the phaware® podcast

A new podcast series devoted to raising global pulmonary hypertension awareness with dynamic stories from PH patients, caregivers and medical professionals from around the world. New Episodes every Monday!

Use the search bar above to search episodes by topic. Search "phawareMD" to discover podcasts with medical professionals.

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The views and opinions expressed in the phaware® podcast do not necessarily reflect the official policy or position of phaware global association. Information on phaware.global and phaware social media sites is provided for general information only. It is not intended as legal, medical or other professional advice, and should not be relied upon as a substitute for consultations with qualified professionals who are familiar with your individual needs.

2023 sponsorship support was made possible from: CVS Specialty, Enzyvant, Johnson & Johnson, Liquidia Technologies, Inc., Gossamer Bio and Merck & Co, Inc.

To learn more about PH visit www.phaware.global. phaware® is a 501(c)3 organization. © Copyright 2023. All Rights Reserved.

Danny Thomas - phaware® interview 408

Mar 21, 2023


In this episode, longterm pulmonary hypertension survivor, Danny Thomas, discuss transitioning into adulthood with PH, navigating relationships, fatherhood, and the power of a positive mental approach to his rare disease.

My name is Danny Thomas and I am from the Akron, Ohio area. I was diagnosed with idiopathic...


Mar 20, 2023

In this episode, longterm pulmonary hypertension survivor, Danny Thomas, discuss transitioning into adulthood with PH, navigating relationships, fatherhood, and the power of a positive mental approach to his rare disease.

Learn more about pulmonary hypertension trials at www.phaware.global/clinicaltrials. Follow us on...


Kori Siroky - phaware® interview 407

Mar 14, 2023

Pediatric pulmonary hypertension caregiver, Kori Siroky, gives a raw and emotional account of her daughter Lilly’s 13 year battle with PH. This interview was conducted on the 4th anniversary of Lillyanna's passing.

 I'm Kori Siroky, I'm from Nampa, Idaho. My connection to pulmonary hypertension is through my...


Mar 13, 2023

In this episode, pediatric pulmonary hypertension caregiver, Kori Siroky, gives a raw and emotional account of her daughter Lilly's 13 year battle with PH. This interview was conducted on the 4th anniversary of Lillyanna's passing.

Learn more about pulmonary hypertension trials at 


Kristine Setser - phaware® interview 406

Mar 7, 2023


PAH and CTEPH patient, Kristine Setser details her PAH diagnosis and her rare, life-saving thromboendarterectomy surgery which she believed to be was her only shot at life.


Hi, my name's Kristine Setser. I am living in Michigan. I am very connected to pulmonary hypertension, as well as a version of PH called CTEPH (