Mar 12, 2024
In
this episode, Dr. Morris Salem, a pediatric cardiologist, discusses
his involvement with Camp del
Corazon, a camp for
children with congenital heart disease. Dr. Salem emphasizes the
importance of addressing the emotional well-being of these
patients, in addition to their physical health. He believes that
the camp helps boost their self-confidence and allows them to have
normal experiences. Dr. Salem also mentions the positive
impact the camp has on parents, some of whom become involved in
planning and fundraising for the organization.
Dr. Salem is also a 2024 Gala del Sol
Honoree. This
gala is a major fundraiser for the camp taking place Saturday,
April 13, 2024. Click Here
for
Tickets. Click
Here to take part in the virtual auction.
#galadelsol #campdelcorazon #heartcamp #camplove
#supportagoodcause
Hi, my name is
Dr. Morris Salem. I am a board certified pediatric cardiologist and
I have an additional board certification in adult congenital heart
disease. I work at Kaiser Permanente in Southern California and I
am happy to say that I'm one of the honorees at
the Gala del Sol,
that's going to
be occurring on April 13th, 2024.
I've been involved with this camp, Camp del
Corazon, for over 20
years. I was very close friends with the founders of this camp,
Lisa Knight, and I continue to be very close friends with Kevin
Shannon, MD. Over the last 20 some odd years, I've been referring
lots of patients to this camp. It's truly been an incredible
experience when these patients come back and tell me about the best
time that they've had in their entire lives and that they want to
go back.
I have on my desk right in front of me a prescription pad that
says, "This is a prescription from me to you to go to camp." I find
kids that are 7, 8, 10, 12, teenagers who are shy, who are in a
space in their lives where they're not confident at all. They don't
have a whole lot of friends and they're not feeling confident about
themselves. In the 15, 20, 30 minutes that they're in the office
with me, it's pretty obvious. I've known a lot of these patients
their entire lives from when there were fetuses all the way up to
however old they are, and you can tell. You can tell that they're
just not confident. They are very gun shy and perhaps very
self-conscious about who they are and what they're able to do and
what their role is in life. Every time I see one of these patients,
I run to my office, grab a prescription and hand it over to them. I
tell them that they have to do this. This is a requirement. This is
medication. A fair number of them actually take me up on it and
sign up for camp.
A lot of these kids are really sheltered by their parents just
because of everything they've been through. The parents are just as
hesitant as the kids are in terms of letting their little babies go
off and do whatever they need to do. Now, obviously they're not
babies, they're older kids, but they treat them like they're a
piece of ceramic. They're very, very sheltered. It is quite
difficult to get both the parents and the kids to agree to go to
this, but a lot of times there's a lot of tears shed on both the
parents' part and the kids' parts before they leave. But once they
get there, it is a transformative experience. It is one that
completely changes their outlook on life. They don't want to come
back.
I had one patient, recently, who fit this scenario precisely.
Parents didn't want him to go. He didn't want to go. I forced him
to go. He went and due to some weather circumstances, they actually
got trapped there for an extra day or two and he did not want to
come back. Absolutely did not want to come back. I saw him shortly
after his trip and he was just glowing, bubbling. He's going to be
a frequent flyer. He's going to keep going back until somebody
tells him he cannot go back anymore.
It's always very difficult when you get patients who have done
nothing wrong. This is not of any fault of themselves. This is
something that's just happened to them and unfortunately they have
to learn to deal with it, and our job is not just to help them deal
with it from a physical standpoint, but also from an emotional
standpoint. The physical standpoint, we can take care of. We have
medications, we have procedures, we have all sorts of different
things that we can do. We can tell you with the ultrasound what the
heart function looks like. We can give it numbers, but the
emotional aspect is something that's a lot more challenging for us
to deal with.
Learning how to treat these patients as not just as patients, but
as human beings who think like any other child does. They need to
experience things that other kids who don't have these limitations
and don't have to think about, can I do this? Can I not do this?
Should I do it? Should I not do it? That's really what keeps us
going and keeps us motivated to keep pushing and treating these
patients and helping them to have normal experiences. That's what
the point of all of this is, not just the body, but the mind and
the soul.
I think camp and self-confidence and your ability to see your
self-worth as who you truly are and not as a diagnosis really helps
open up a lot of opportunities for you. These kids come back and
they want to do things. They want to go out and run a little bit
faster in PE. They want to join that team. Maybe they're not the
fastest, maybe they're not the strongest. It doesn't matter. They
just want to be involved. That in and of itself really helps to
propel them and open up more and more and more doors and really
make them productive members of our society, which is very
important.
It's very interesting, I think a lot of our parents are also
incredibly positively impacted by this camp experience that their
children have. One of my parents of a child who actually attended
camp has actually become very, very invested and very, very
involved in the camp in terms of planning and in terms of
fundraising, in terms of all aspects of this camp. It is a sense of
belonging. It's a sense of making a difference and taking this
experience that you had nothing to do with provoking or bringing
onto yourself, but turning it into a positive aspect and turning it
into something that you can share with other people who are going
through the same experience.
Being at Kaiser, we take care of roughly 5 million members in the
Southern California region. As you can imagine, that's a huge, huge
number of patients that we deal with. I've been at Kaiser close to
25 years, and I've seen and taken care of thousands upon thousands
of patients. Part of what I do is really coordinate and take care
of all sorts of patients with congenital heart disease and all
sorts of associated conditions from San Diego all the way up to
Bakersfield.
I'm well known and affiliated with all the major institutions in
town, including UCLA, Children's Hospital of LA, Loma Linda,
everybody in Southern California. It's through my affiliation with
all these institutions and my referral to the camp, many, many
patients over the last 20 years, that the camp committee took
notice and said, "Wait a second. Maybe this guy who does a lot of
work and refers a lot of patients should be someone we
recognize."
I really want to encourage everybody to look into this amazing
organization, Camp del Corazon. They are a purely volunteer led
organization with one goal and one goal only in mind, and that is
to take care of these children and their families with congenital
heart disease. They do this out of love. They do this out of
commitment. They do this out of a sense of purpose. This Gala
that's set for April 13th, 2024 is their major fundraiser. It is
where they collect a majority of the funds that they're going to be
utilizing over the summertime for this camp that is held in
Catalina.
This camp
is
really intended for patients who are special, patients with
congenital heart disease, other affiliated conditions like
pulmonary hypertension, anything that involves the heart and the
lungs as a chronic issue. These are the types of kids that attend
this camp in a very safe and very closely monitored fashion so
nothing can happen to them. If it does, there are people there who
can take care of them and make sure that they're safe. It is free
of costs. All expenses are completely paid for, mainly from
fundraisers such as this. There is a virtual camp for
families that cannot make
it to California to make it to this camp.
There is both a silent auction and a
live auction that will be offered at Gala del Sol
on
April 13th. That is well, well worth everyone to sign in and look
at if you can't physically make it to this Gala.
My name is Dr. Morris Salem and I'm aware that my patients are
rare.
Learn more about pulmonary hypertension trials at www.phaware.global/clinicaltrials. Follow us on social @phaware Engage for a cure: www.phaware.global/donate #phaware Share your story: info@phaware.com